Sunday, November 12, 2017

Desire for measurements

“I wish there was a way to measure pain;” my first thought as my alarm went off in the morning. It is there and I know it is there and sometimes I don’t think people believe it.  I wish I could explain to that doctor that when I screamed during the exam it is significant, that decades of practice of left me to be able to calmly discuss what I feel.  However measure my heart rate, take my blood pressure, look at the stress on my internal organs and maybe the medical world will see me and hear me. 

The idea and safety of being able to measure pain, of being able to say “see it is a ten,” bed day is totally justified.  Is a desire to give way my authority, it is a way of saying I don’t quite trust myself to know what it right for me today.  It is a desire to be safe from other people’s judgements and lack of understanding.  The scale doesn’t really make sense anymore, because it is not just the pain, it is the stress of normal life. 

Despite the pain and uncertainty Adam and I headed out for the day; we walked in the sun and the fresh air, and to me it felt like the first time in months I had felt the sun on my skin.  That I have been constantly hustling in and out of buildings, afraid of running out of energy before my work is done.  That I take a few minutes in the morning, but the sun isn’t quite up yet and since the time change I haven’t even done that. 

There is no way to measure the pain, there is also no way to measure the joy of spending the day with Adam.  There is no way to measure the fact that he tells me it is okay to sit down and rest, that he holds me when I cry and scream.  He continues to tell me that I worth it, that he doesn’t always like it, but I am worth it. 

These are the moments that I need to be the answer.  I need to find a new doctor, I need to make the decision if I want to lay in bed or go out to the festival with my husband.  I need to decide if I want to smile through this or lock myself away.  I’m tired and worn out right now, I’m tired of being strong so I let the tears come with the laughter, I walk around and I rest and at the end of the day I hold on to Adam. 


Question of the day: What was your first thought when you got going this morning?  How did that impact your day?

Thursday, October 26, 2017

Harvesting

Chronic illness and going back to work…. yes, I have a chronic illness but don’t mistake that for meaning that I am my chronic illness.  At the same time there are moments when I do feel that is all I am, when I am worried about falling asleep driving home, or to work.  When I look at facing a 12+ hour shift and wonder where the energy will come from.  To fighting back tears because there is someone in front of me that is also in pain, and my pain can wait.

I have a huge toolbox when it comes to handling pain, from meditations, to herbs, to prescription, conversations with friends and to just being in Adam’s arms.  But lately I have been facing something new, new unrelated symptoms.  First comes the denial and hope, it is just the stress of the job.  Then a pattern starts to emerge, steps are taken, and it doesn’t go away. 

That is when the fear comes, that place I am right now.  Waiting to see another doctor, hoping to for an answer and remembering the pain of that journey two years ago, the not knowing, not being believed and finally chronic illness but also tools.  Tools for physical support, emotional and spiritual.  Because all three must be treated.

Since I don’t have the physical tools right now.  I go to my emotional and spiritual tools, which need to be sharpened.  That is the journey I am on, sometimes it is finding new tools and sometimes it is polishing and sharpening a tool that hasn’t been used in a while. 

It is time to trust the process to keep going, whatever and however that looks.  Crying, screaming, laughing, smiling, fight and surrendering it is all there, each and every day.  You ever notice how you can brighten someone’s day with just a simple smile, a simple word of sincere encouragement, or taking a moment to really listen?  Not only do I notice how it can change someone’s day, but I am experiencing how it changes my day.  A smile or hug from a co-worker, that brief conversation of encouragement might make a huge difference to someone and everyone they interact with.  The key facet is sincerity, it is taking the time to see the person first, pausing to put down whatever is going on and see what is being reflected to you.  Such simple words and yet a lifetime pursuit.

Question of the day: What tools do you have and what tools do you get to forge as your face your upcoming battles?  It is fall, time to harvest;  what did you grow this year?

Sunday, October 15, 2017

Making Space

Here is the thing, learning and doing something new has a cost.  It takes time, it takes effort and sometimes it really sucks.  When I have been in the hospital for 32 hours and I still have homework and medical treatments to do when I get home, things start to fall through the cracks.   Adam and I rarely see each other, my time to practice, read or meditate have been condensed or forgotten some days.  I signed up for a really tough year, and I didn’t fully realize how much it was going to cost.  I also have no idea where the process will take me.  I don’t know what will survive the extra stress.  I know that I will learn a lot, I know I will learn things that will serve me in my life but right now I feel the cost.

Right now the things I have to brag about are that I keep getting up, I keep driving to work and I keep pushing myself to go into those patient’s rooms and learn.  I find myself feeling down when I look at Facebook, look at all these amazing people that I don’t have the time to go see.  Adam continues to remind me, this is only for a year, but I still needed to find some self care.

I needed to find some creative outlet that was not theological discussion, that was not making meaning and purpose out of a tough visit, that was not thinking of different ways I could’ve handled the situation.  I went out of my comfort level and signed up for a doodling and dance class.  It was exactly what I needed, the space and invitation to be creative but with prompts to help guide that. 

I find myself in a part of the process where I feel I don’t know if it will be worth it, where I am trusting in something bigger then me.  Trusting that however this year ends up transforming me in such a way that will continue to serve me and those around me.  That I might have to squeeze in self care into small moments, small classes and reach out of my comfort zone when my schedule allows.  But I also need to be really gentle with myself, to remember that I am worth the time to take that class, that I don’t need to bring my computer everywhere to squeeze in a few minutes of reading or homework.  That somehow, I need to discover who else I am.


Question of the day:  How do you make time for just yourself?  Name something from this week that inspired you, gave you a bit of respite or helped you connect to yourself. 

Monday, September 4, 2017

Scarcity

Scarcity, this idea of not having enough, not being enough that plays in our subconscious.  This theme that the media has lead us to believe can be satisfied by abundance, by buying things, by being more….  It is a pattern I struggle with, to remind myself that abundance does not balance out scarcity, that doing more will never equal me feeling like I am enough.  

There are tools I have learned, the first is too look around and see if indeed there is something lacking, or something threatening.  To come away from the stories that my mind spins and notice what is around me, find gratitude for what is around me and take some really deep breaths.  

It is still a well worn pattern, in my nervous system, it can play like a record and it takes attention to notice the pattern, to break the pattern and when energy is really low to admit that I need to change the pattern.  I get to a point with panic attacks, where I am so exhausted that it is easier to keep playing the record, but once I notice the record I need to break it.  I need to apologize, I need to own up to my behavior and make an effort to change.  

However this past week, resources felt scarce, or in some cases nonexistent.  Things like food, water, shelter and medication became real issues.  It started with concerns about medication, a delay that has turned into a number of weeks at this point.  Which meant I took stock of my ‘emergency” stock, had to alter herb dosages and try to plan for the chaos that hit Houston.  There was no way to plan, there was no way to predict how long we would be out of our apartment, and I had no way of knowing when I might receive a shipment of my bladder medication. 

Eventually this has all lead to a full blown flare and my rescue medication has yet to ship.  So the second time that Adam and packed up to evacuate we both realized we wanted to cry and yet at the same time we felt pretty numb.  I started thinking about what is the way to balance this scarcity idea, belief?  Because for me telling myself I am still enough when I am in pain and scared doesn’t break the pattern.  

Resourcefulness is the way to balance it, to see what can be done, to understand that I have other methods of coping and helping myself.  To understand that when someone offers you a bed and a shower it is not out of pity but compassion.  To accept that people still love me and care for me, to understand that when I am afraid I am not thinking, there is a blessing of having people around me as a resource.  Sometimes the resource is working on foundations and sometimes it is going to a friend and saying “help me, I don’t know what to do.”  It is admitting that I am vulnerable and scared, that I am not thinking clearly and that has nothing to do with how weak or strong I am.  It has nothing to do with what I will be able to do tomorrow, it is that moment that requires me to reach out to other people as a resource.  

I hear the message everywhere and everyday that I am not enough, and someone offering a different way to “fix it.”  There is no quick fix, relationships take time to build, trust takes time, resources take time and it takes time to learn new patterns in the nervous system.  This week has been rough and the lessons are just beginning to come to the surface, but valleys bring fertile growth.  As long as I am still here, there is time to stand back up and work on those resources again.  


Question of the day:  What is your response to scarcity?  What methods do you use to bring yourself back into harmony?

Monday, August 28, 2017

Praying

Yesterday Adam and I headed down to the Bayou a few blocks from our apartment to see where the water was.  As we approached, we saw the water in the street and neighborhood, flashing lights from a constable was behind us and we looked around at the home right there on the edge, the boys playing in the water and the families outside with mixed expressions.  It was about 4 in the afternoon, and I kind of wanted to leave, to get out. Worried about what could happen and how things would unfold.  

Adam who is a bit more grounded and reasonable listed the reasons to stay and that we were safer, so we stayed.  Despite anxiety about food reserves for me and medication concerns (thankfully nothing life threatening.). As my anxiety built up and I continued to remind myself that I was lucky, I was dry, I had power and at least I had rice and bone broth.  I would get through.

However my heart still ached, still wanted to do something, to help.  So what can I do right now?  I have no skills for search and rescue, but I have a closet of clothes that can always be cleaned out, I have non-perishable food that I can’t eat that I haven’t given to a food drive yet, I have toothpaste and other toiletries that I buy in bulk.   So I started cleaning out my stores and gathering things together.  Because they will be needed for a long time.

That is thing with watching a natural disaster unfold in your home, you want to help right now.  It is hard, but there are things I can do to help right now and more to come as this continues to unfold.  

I can talk to my neighbors and ask how they are doing, ask how are their families are.  Give them space to talk.  I can check on my friends, and see what is going on.  I can cry as both me and my friends await rescues.  I can hold the door and help someone bring in their stuff, because they weren’t able to evacuate.  I can smile and be calm standing in front of the grocery store that never opens.  Saying a quick prayer for the employees.  

We are all looking for ways to help right now, and there are plenty of ways to lend a hand.  But this journey is just starting for some people, stay with the journey not just the first reaction to help during the crisis.  My heart is breaking in both ways, this has brought the city together, brought neighbors together and reminded all of us that we are not alone on our journeys.  




Wednesday, August 23, 2017

Stepping Stones Aren't Always Smooth

It feels like a first step, and yet there have been so many steps leading up to this point that when does one say it is really the “first step.”  It is certainly opening a new door and a new chapter, but in this case it doesn’t quite feel like I am also closing a chapter.  I am bringing that chapter with me.  I am bring all of who and what I am with me into this new job and new opportunity.  

That has to be the most terrifying thing in the world for me, I have no fancy piece of paper, I have no shiny board certification, I have me.  I have my life experiences, my wisdom and my teachers behind me.  I am entering an new arena, where religion and philosophy start to become science.  It starts to be tested, will this wisdom help others as well?  The scientist in me is cringing a bit, because there is no way to provide reproducible data, but I am still testing wisdom, teachings and my beliefs by becoming a chaplain.  I am testing how well will I understand and appreciate people’s worlds, how well will I understand what they are feeling and not judge them by what they do, how well will I hold space for people day in and day out. 

I started looking back, at all the little steps that got me here.  I wrote about them, 16 plus pages of all the decisions that I thought would make me a good candidate for the job.  However curiosity got the better of me and I looked back on my blog to see what was going on five years ago.  

You wouldn’t know it from the photos, but I was barely able to get out the door.  This is why people are complex, blogs, social media and interactions don’t give you the picture into how complex people are.  Adam and I were silently grieving an IVF cycle that didn’t result in a positive pregnancy test.  I say silently because only a few people knew that we had chose to try again.  When I got that phone call from my doctor, I collapsed on the floor.  I remember sitting there and having the last conversation I would have with God for a good long while.  Thinking that there was no way this is all he had planned for me, disappointment and heartbreak.  Until in my grief I decided there was no God, and it was best to put away that little fairy tale, that things had a purpose and meaning.  

Now I see that God was listening, that even though I turned away he still kept the door open and placed people in my life that would slowly lead me back.  That if Adam and i felt we had no tools to deal with this grief, there would people to ask, to talk to and people that surprised us with their kindness. It was a gentle nudging to get my feet back on the path, to look around and see that my life was not defined by one event.  I was not looking for a religion, I was not looking to become a Priest and yet one step at a time it continued to make sense.  

Although right now I feel like I will be walking into those patients’ rooms alone, I know who and what is behind me.  I trust that the Dao will put me there for a reason and I have to show up and be open.  Right now I don’t feel like I’m enough, but what if I changed that?  What if I decided I am new to this, I am a beginner and it is okay if I don’t have every answer?   In that context, this is the first step, the step to accepting that I have a lot to learn.


Question of the day:  Does opening a new door mean something else closes, or can you take the complexity without the burden into that new space?  


Friday, August 18, 2017

Six months

Change...it is a house rule and when it happens slowly, it is easy to forget where I was before.  It is easy to lose sight of how much progress has been made.

Six months ago, I was in my doctor's office for a follow-up, to discuss what about my treatment plan was working and what wasn't.  At that point I was still getting up six-seven times a night to urinate, I was curious what else could be done, so I could get some solid sleep.   She suggested a few things, a hormone treatment, different medication or a nerve stimulation treatment which would take time.  In a world where sometimes I lose track and just want a pill to fix it, three months seemed like a long time.  But it was still the best treatment suggestion for me.

In the last six months, it took a while to even start the nerve treatment I have had two huge moments, where I cried in gratitude.  The first was a few weeks ago, when I no longer had blood in my urine, that has not been the case in years.  The second time was when I slept completely through the night without having to get up once to urinate.  

Change happens slowly, health returns and it takes time to learn what helps and what doesn't.  Is there one thing that I can say helped the most, no.  It was little things, each little thing that I tried, stuck with or eliminated.  It was both my doctor and my acupuncturist taking the time to continue providing new options and doing their own work and research to be able to find something that will help.  

Adam seems to get this question a lot.  “So Lenore is better right?”  Yes and no, it depends on where you are looking from.  Yes I am so much better then I was, I know more about my body and how to listen to it.  However, there is still a lot going on, I am still taking lots of herbs and supplements, I am still very cautious about my diet (I finally got to introduce broccoli!!!), I still have plenty of sleepless nights and days where walking is difficult and painful.  All of this effects Adam’s life as well, when I have a sleepless night even if I am not the couch, he doesn’t sleep as well.  When I am hurting, it wears on him.  Understand that is a tough question for him to answer and he sometimes needs support too.  He does so much to help me, and it inspires me to keep going.  He makes me laugh, smile and find the beauty in my darkest moments.  He fights harder for me, and has never given up; he is amazing!

However each one of the little changes and improvements gives me hope, gives me hope that I will be able to wean off regular bladder instillations.  Hope that I might get to have chocolate or spicy food again.  Hope that I will be able to run, without so much fear and tension.  Hope that I won’t feel like less then I was before because of this condition, not because of what I can or can’t do; but because my perspective will grow and change.  That I will no longer compare myself to some idealized illusion from the past and will accept every bit of myself in the here and now.

Each one of those steps forward, reminds me that life is continuing to grow and change, that I am not stuck, no matter how it feels.  Change sometimes takes time, but it happens, the question becomes what are you working towards.  


Question of the day: What are you working on right now, that has you feeling impatient?  Can you go back and see who you were six months ago and see the movement?